Tag Archives: hyperthyroidism

NHS fail

I am in Nottingham, UK. Supposedly to get some support from family for my rapidly escalating health problems.

However, I have ended up being the carer and the “person kicking up an almighty stink” to get appropriate care for my sister. (I note that this has NOT, thankfully, caused my own health to worsen – being in a loving environment has been hugely helpful, even it means trying to explain to two 6-year olds why the f%ck I had no idea how the X-Box game Minecraft worked, and why “patience” – in order to get coins for my angry birds game – was a virtue and not a reason to go apeshit LOL).

Anyway, Elle has had a series of symptoms very similar to mine over the past year. However, she has also experienced a number of symptopms suggestive of hyperthyroidism recently which have not been taken seriously by her primary care doctor over a 6 week period.

Well the sh%t hit the fan a couple of nights ago when I decided enough was enough and she had been fobbed off enough, by a primary care physician, and a service contracted out (by the hospital?) to triage less severe cases.

I sent a rude tweet accusing Nottingham hospitals trust of risking a thyroid storm in a patient – which was no exaggeration, her symptoms were looking increasingly like that, yet no appropriate tests had been done, just the bare minimum blood count levels. There was, in short, no patient-centred care and certainly no attempt to look at the whole picture plus the trends in her thyroid and other levels.

So here is Elle’s story in her own words.

As she said, it is a sad state of affairs when someone who, although not a medic, knows the system, has to resort to social media to ensure the basic, the BASIC tests that would have identified a condition that can become life-threatening.

The Nottingham Hospitals came good in the end, showed support, ringing at a late hour to get things moving, but personally I think she has a shit primary care physician.

shaming useless medics via social media

My sister was yesterday diagnosed with thyrotoxicosis. In addition to the traditional symptoms of hyperthyroidism she has had intolerable pain in her thyroid amongst other things.

Things came to a head today. She went to the GP today who palmed her off on NEMS services (despite her letter warning of the severity of her diagnosis and that she had had to immediately start treatment – which was yesterday). She went to NEMS and had blood tests…..they came back and gave her basic blood count results, ignored the rest and more-or-less told her to bugger off. WTF?!

She was discharged, despite suspiciously high pulse (even by the standards of our family). Continued to feel awful at home.

So I tweeted the hospital (Nottm NHS Trust) and the NEMS used to palm off patients they deem less needing of treatment.

Ooooh, results within half an hour. Telephone number to real person for Elle to ring. Re-analysis of bloods tomorrow and will be contacted by endocrinologist to discuss the crucial thyroid enzyme ratios. And if her deteriorates tonight she is to ring 999 and tell them she is suffering a thyroid storm so she is rushed to A&E.

Social media. Shame shitty GPs and primary care providers who can’t or won’t spare the 20 seconds it takes to read a critical letter from a consultant alerting him or her to a condition that could be extremely serious. Yes I know the system is strained, but we shouldn’t have to resort to these methods.